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Not usually one to ask for thoughts/prayers
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Jul 06 2009
04:33:49 AM
dizzysmom Goofy Gorillatoes GliderMap Visit dizzysmom's Photo Album dizzysmom's Journal IN, USA 3882 Posts
Wow - That was six months ago?! How'd that happen? She's gorgeous!!
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Jul 06 2009
05:45:42 AM
glider_mommy Face Hugger Visit glider_mommy's Photo Album AL, USA 931 Posts
AWWWWW Kylah! She is just beautiful! So how long will she have the oxygen? I know babies born that early have more long term situations. My cousins baby was on oxygen till she was 2 years old. BUT she also had a trach.. so that was a bit different.
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Jul 06 2009
06:50:21 PM
meaga117 Super Glider GliderMap Visit meaga117's Photo Album 208 Posts
She's beautiful!
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Jul 06 2009
07:07:10 PM
Mom2MandG Face Hugger GliderMap Visit Mom2MandG's Photo Album 766 Posts
Wow she is beautiful. I just read most of the story. What a miracle!
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Jul 06 2009
07:14:18 PM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
They aren't sure how long she'll be on the O2 but they do say she has and always will have chronic lung disease...from the respirator early on. The O2 is a really low flow so that's good too! I also can't believe she's 6 months. She looks so normal! LOL She's a great baby too. She still isn't a great eater, but she is still gaining and they're happy with that. Overall, she's wonderful!
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Jul 06 2009
09:09:22 PM
Rita Glider Sprinkles GliderMap Gliderpedia Editor Visit Rita's Photo Album Rita's Journal MO, USA 12214 Posts
Awwww - she is beautiful! And truly a miracle. Im so happy to hear she is doing well.
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Jul 06 2009
09:48:30 PM
Gizmo-n-Roos Mommy Fuzzy Wuzzy GliderMap Visit Gizmo-n-Roos Mommy's Photo Album OH, USA 1624 Posts
Thanks for the update! She is a real beauty!
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Jun 10 2011
11:55:31 AM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
Sooo...yes, this thread is well over 2 years old BUT I just finally saw the video March of Dimes did featuring my brother and his family so I thought I'd share (for those of you that remember or had been following the story):




and.....here's Ally just the other day!



Edited by - kyro298 on Jun 10 2011 12:03:20 PM
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Jun 10 2011
01:28:42 PM
Raven2evil Super Glider Visit Raven2evil's Photo Album USA 224 Posts
Oh wow. She's adorable. :) I'm glad everything worked out for you all.
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Jun 10 2011
02:12:17 PM
DoubleBogey Fuzzy Wuzzy Visit DoubleBogey's Photo Album USA 1244 Posts
She is absolutely BEAUTIFUL. All the way from the beginning...just BEAUTIFUL. Is she off oxygen now?
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Jun 10 2011
03:47:30 PM
Catman Goose Catcher GliderMap Gliderpedia Editor Visit Catman's Photo Album CO, USA 2670 Posts
Awww

Kylah I saw them at Home Depot a few weeks ago and you would never know what a rough start they had. Beautiful family!
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Jun 10 2011
09:56:06 PM
dpatters28 Goofy Gorillatoes GliderMap Gliderpedia Editor Visit dpatters28's Photo Album USA 3134 Posts
Aww, what a darling little girl!
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Jun 10 2011
09:59:24 PM
Faerie Fuzzy Wuzzy GliderMap Visit Faerie's Photo Album 1833 Posts
She is just precious!!
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Jun 10 2011
10:13:12 PM
Elysa Face Hugger Visit Elysa's Photo Album USA 433 Posts
She is absolutely precious!
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Jun 11 2011
01:09:35 AM
TheHomermomma Fuzzy Wuzzy Visit TheHomermomma's Photo Album 1332 Posts
Oh, Kylah! She is beautiful! My oldest daughter was born at 32 weeks and had 1/4 of her lung removed at a week old. She has cerebral palsy and didn't walk until she was 18 months old and they told us that she would always have breathing issues and she would not be able to run, would get winded easily and that she would get bronchitis frequently. They said that she would have learning disabilities and that she would need a lot of extra care. BUT! She is an amazing little girl. Cheerleader, soccer player, flag football player, straight A student, smart as a whip and has an I can do anything you can do attitude. You would NEVER know that she has any issues at all.
Your niece is beautiful and you can tell just from the photo that she is a smart, spunky, sweet little girl!
Thank you for sharing her story with us!
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Jun 11 2011
11:40:10 AM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
Spunky is a great word. LOL She's been off oxygen for about a year but she's had to have tubes in her ears, her tonsils out and a surgery to enlarge her trachea all in the last few months. She also has horrible sleep apnea. Otherwise, she's in great health!

edited to fix spelling

Edited by - kyro298 on Jun 11 2011 12:23:42 PM
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Jun 11 2011
12:05:06 PM
dragonflycatcher Face Hugger Visit dragonflycatcher's Photo Album FL, USA 723 Posts
Omg that baby is amazingly cute!...I had some issues when I was preggo and was hospitalized off and on for the last 3 months but always went back home I had twins but lost one early on and they were afraid I would lose the second but he ended up being born late and is a big ol beast now. God bless lil ally she will be a lil beastling before you know it!
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Jun 11 2011
03:03:09 PM
Raven2evil Super Glider Visit Raven2evil's Photo Album USA 224 Posts
I've had tubes in my ears, had my adnoids removed (nose tonsils), and have sleep apnea still and I'm still good. It's all little minor things that will lessen as she grows up but may always be there. But she's beautiful and from her history she's a fighter.
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Jun 11 2011
05:04:38 PM
Dd Fuzzy Wuzzy Visit Dd's Photo Album USA 1135 Posts
She is beautiful I read this story and watched the video and I cried my eyes out when I saw how wonderful she has grown I didn't know about this at first mainly bc I wasn't a member in 09 but she is amazing your family and yourself are wonderfully, strong people! Shell grow up and be something amazing you can tell by looking at her photo how wonderfully blessed you all are! Wonderful Amazing story! And I wish you all the best through everything. I'm also really glad your other niece got her 9th birthday party the photo of the two of them together is georagous!!

So glad everything is working out!!!
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Jun 12 2011
10:04:10 AM
YoungGun Face Hugger GliderMap Visit YoungGun's Photo Album LA, USA 526 Posts
Wow,she is absolutely stunning. What a beautiful little girl, inside and out.
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Jan 28 2012
10:06:30 AM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
Happy 3rd Birthday, Ally!!! Still amazed....
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Jan 28 2012
11:06:20 AM
hypnotist321 Fuzzy Wuzzy Visit hypnotist321's Photo Album hypnotist321's Journal 1742 Posts
Awe....
Prayer prayer and more prayers :-)
Never stop calling her peanut - that is a sweet name for Uncle Kyro to use :-)
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Jan 28 2012
11:08:27 AM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
...or AUNT Kyro. LOL
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Jan 28 2012
01:37:26 PM
dpatters28 Goofy Gorillatoes GliderMap Gliderpedia Editor Visit dpatters28's Photo Album USA 3134 Posts
Awww, I can tell you're a proud uncle, Kylah! Happy Birthday Ally!!!
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Jan 28 2012
02:25:20 PM
jjmurph Face Hugger GliderMap Visit jjmurph's Photo Album USA 836 Posts
Kylah is an uncle?
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Jan 28 2012
02:32:37 PM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
If so, I have a lot of explaining to do to my husband.
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Jan 28 2012
04:28:56 PM
JazzNZoeysmom Zippy Glidershorts GliderMap Visit JazzNZoeysmom's Photo Album USA 5354 Posts
Well u did just chop off several inches of hair....maybe therein lies the confusion.
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Jan 28 2012
05:12:16 PM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
Good point...
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Jan 28 2012
07:07:12 PM
JazzNZoeysmom Zippy Glidershorts GliderMap Visit JazzNZoeysmom's Photo Album USA 5354 Posts
Just post a pic......there will be no confusion....ur beautiful.
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Jan 28 2012
11:52:14 PM
kyro298 Glider Sprinkles GliderMap Gliderpedia Editor Visit kyro298's Photo Album kyro298's Journal CO, USA 15262 Posts
Not usually one to ask for thoughts/prayers
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GliderGossip GliderGossip
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Not usually one to ask for thoughts/prayers